Generium, a full-cycle company, has become a partner I of the All-Russian Pharmaceutical Run in the Vladimir Region, where within the framework of the fifth day of the event they will discuss the problems of orphan drugs in Russia.
The list of rare (orphan) diseases in Russia includes more than 200 items. For most of them, there is no effective treatment or it is expensive. Also, the necessary diagnostics are not carried out, which does not allow to determine the true cause of the symptoms, as a result, the efforts of doctors are aimed at improving the quality of life, and not getting rid of the disease.
Only a few pharmaceutical companies are ready to invest in the development and production of orphan drugs today, since a small demand for such a group of drugs dictates special rules of the game. The state should play a key role in solving this problem – the only possible source of funding for research activities. According to experts, this issue requires a global expert discussion of each aspect.
To participate in the Pharmaceutical Run business program, you must fill out the preliminary registration form on the website https://pharmprobeg.ru/programma/ , as well as receive confirmation from the organizers.